| 7 a.m. - 7:45 a.m. | Morning Yoga Meeting Room: Glen Ellen Room, Tower Meeting Rooms |
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| 8 a.m. - 10 a.m. | Tax Reform: What's at Play and What's at Stake? Family philanthropy will certainly experience the effects of the 2012 fiscal cliff decisions and join the entire charitable section in bracing for possible changes in the tax laws related to charitable giving that are likely to surface in 2013’s tax reform deliberations. By all accounts, these deliberations will be as profound as the last major tax reform action in 1986. This information-packed session will provide an inside look at one of the major influences on the debate, the recommendations of the Simpson-Bowles Commission, including a Meet the Press –style roundtable discussion and a presentation by the Fix the Debt Campaign.
Listen to the audio recording of this session. Presenter(s): Matt Dolan, Director, The Federal Policy Group, LLC; Mike Halligan, Executive Director, Dennis and Phyllis Washington Foundation; Kristin Hull, Director, Nia Community Foundation; Gloria Johnson-Cusack, Executive Director, Leadership 18; John Tyler, General Counsel, Ewing Marion Kauffman Foundation Moderator(s): Sue Santa, Senior Vice President for Public Policy and Legal Affairs, Council on Foundations
Meeting Room: Imperial Ballroom, Ballroom Level |
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| 10 a.m. - 10:30 a.m. | Refreshment Break in Family Central Meeting Room: Regency Ballroom, Ballroom Level |
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| 10 a.m. - 11 a.m. | The Genius is In: Taxation and Compliance Do you know where you stand on tax filings, tax on net investment income, failure to distribute income, excess business holdings, investments that could jeopardize the foundation's charitable mission, and taxable expenditures? Do you have other tax related questions? Come and meet Neil Kawashima, an internationally acclaimed expert on taxation for family foundations and other nonprofits. Presenter(s): Neil T. Kawashima, Partner, McDermott Will & Emery
Meeting Room: Regency Ballroom, Ballroom Level |
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| 10 a.m. - 12 p.m. | The Graphic Recorders Are In Presenter(s): Kayla Kirsch, President, LEAPFROG CONSULTING; Karen Perkins, LEAPFROG CONSULTING
Meeting Room: TBD |
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| 10:30 a.m. - 12 p.m. | Concurrent Sessions *Did you hear me? Listening and Storytelling in Family Philanthropy How can you learn to effectively tell your own stories and truly listen to the stories of your family members, staff, and grantees? This interactive session will provide you with skills necessary to build self-awareness, empathy, and relationships through a deeper understanding of stories, emotions, and the generational bias inherent in us all.
Listen to the audio recording of this session. Presenter(s): Danielle Oristian York, Director, 21/64 Moderator(s): Sarah Abbott, National Organizer, Resource Generation Session Designer(s): Michael Gast, Family Philanthropy Coordinator, Resource Generation Meeting Room: Pagoda Room, Lobby Level *Donor Leadership in Family Foundations How can an individual be a donor leader within his/her own family foundation? Discover how you can work around the generational differences, cultural and political disagreements, and structural roadblocks to effect change that is in line with the foundation’s values, mission, and goals?
Listen to the audio recording of this session.
Presenter(s): Jim Coutré, Partner, The Philanthropic Initiative; Fred H. Daniels, President, The Fred Harris Daniels Foundation; Deborah Iarussi, Board Member and Program Officer, Sills Family Foundation Session Designer(s): Ellen Remmer, Managing Partner, The Philanthropic Initiative Meeting Room: Gold Room, Ballroom Level *Innovation Foundations: Seeding Inventions & Solutions for the Global Good Hear from family foundations that have provided high-risk capital/grants to fund breakthrough technologies and solutions with global benefits. We'll explore how foundations, even small ones, can play a critical role in the social innovation ecosystem.
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Presenter(s): Kristin Hull, Director, Nia Community Foundation; Jessamyn Lau, Program Leader, Peery Foundation Session Designer(s): Daniel Siegel, Cofounder, Good World Advisors; Jenny Yancey, Cofounder, Good World Advisors Meeting Room: California Room, Ballroom Level *Turning the Page: Realigning Your Foundation’s Grantmaking Strategy Effective grantmaking aligns donor legacy and family interests with a changing world. However, generational succession, geographic dispersion, a capital event, and/or changing trustee perspectives may create the need to redesign a foundation’s grantmaking program. Utilizing case studies and small group discussions, this session will explore change strategies that honor family and community ties.
Listen to the audio recording of this session. Presenter(s): Mary Phillips, President, GMA Foundations; Amy Segal Shorey, Director, GMA Foundations Session Designer(s): Jason Born, Senior Program Director, National Center for Family Philanthropy; Mary Phillips, President, GMA Foundations Meeting Room: Sacramento, Tower Meeting Room Impact Investing 201: Making it Work Building on Sunday’s Impact Investing 101 session, we will now focus on how to operationalize your impact investing strategy, including clarifying your goals for mission investing, ensuring alignment between your foundation’s investment policy and its mission and values, getting buy-in from board and staff, gauging internal capacity vs. the cost of using external resources and advisers, and adopting appropriate policies and procedures. We will also discuss successful collaborations in this arena.
Listen to the audio recording of this session.
Presenter(s): Victor De Luca, President, Jessie Smith Noyes Foundation, Inc.; Taryn Goodman, Impact Investing Director, RSF Social Finance; Charly Kleissner, Trustee, K.L. Felicitas Foundation Moderator(s): Joy Anderson, President and Founder, Criterion Ventures Session Designer(s): Christine A. Elbel, Executive Director, Fleishhacker Foundation; Kimberly Roque, Independent Services Manager, Council on Foundations Meeting Room: Crystal Room, Ballroom Level Race, Diversity and Inclusion in Family Foundation's Grantmaking Strategy When pursuing strategies on race, diversity, and inclusion, family foundations must also consider how those strategies will impact their practices, policies, and systems. Speakers will highlight a range of approaches to inform participants’ thinking on this important topic.
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Presenter(s): Quinn Delaney, Cofounder and President, Akonadi Foundation; John Morning, Trustee, Various Organizations; Gerald Solomon, Executive Director, Samueli Foundation Moderator(s): David Maurrasse, President and Founder, Marga Incorporated Session Designer(s): David Maurrasse, President and Founder, Marga Incorporated Meeting Room: Hillsborough, Tower Meeting Room Salon: Director Compensation To pay or not to pay directors and trustees? That is the question private foundations continue to debate, and it’s also the subject of this salon discussion. Serving on a family foundation board may impose financial challenges, particularly for younger, early-career family members or external leaders. However, voluntary service can also encourage a deeper connection to the important values of altruism and public benefit. In addition to understanding fiduciary duties and legal safeguards, family philanthropists should be familiar with the nuanced considerations on both sides of this issue. Moderator(s): Andrew Schulz, Executive Vice President and National Director of Community and Legal Relations, Foundation Source, 2013 Annual Conference Task Force Member
Meeting Room: Piedmont, Tower Meeting Rooms Washington Update With the elections behind us, the president and Congress are poised to review and reform the tax code to reduce the nation’s mounting debt. Everything is on the table—from raising marginal tax rates to capping the charitable deduction. Join members of the Council’s government relations team as they share the latest news from Washington, D.C. They’ll also offer tips on navigating the sometimes muddy political waters and demonstrating philanthropy’s effectiveness and value to society.
Listen to the audio recording of this session.
Presenter(s): Stephanie Powers, Managing Director, Public-Philanthropic Partnerships, Council on Foundations; Sue Santa, Senior Vice President for Public Policy and Legal Affairs, Council on Foundations; Kelly Shipp Simone, Vice President Legal Affairs, Council on Foundations Session Designer(s): Shelton R. Roulhac, Senior Policy Analyst, Council on Foundations Meeting Room: Atherton, Tower Meeting Room |
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| 10:30 a.m. - 12 p.m. | The True Cost of Deportation: Sin Pais Screening and Discussion Join Media Impact Funders, Grantmakers Concerned with Immigrants and Refugees, and Hispanics in Philanthropy for a special screening and discussion of “Sin Pais.” Learn how deportation and current immigration policies connect to a wide range of philanthropic concerns, including public health and safety, community vitality, family cohesion, and social and economic justice. Presenter(s): Diana Campoamor, President, Hispanics in Philanthropy
Meeting Room: Empire Room, Ballroom Level |
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| 10:30 a.m. - 10:50 a.m. | Learning Lab: National Study of the Next Generation of Major Family Donors Presenter(s): Michael Moody, Ph.D., Frey Chair for Family Foundations and Philanthropy, Johnson Center for Philanthropy at Grand Valley State University Session Designer(s): Michael Moody, Ph.D., Frey Chair for Family Foundations and Philanthropy, Johnson Center for Philanthropy at Grand Valley State University Meeting Room: TBD |
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| 11 a.m. - 12 p.m. | Extended Learning Lab: Building Grantees' Capacity Within Technology Strategies Presenter(s): Anand Chandrasekaran, Board Member, Firelight Foundation; Lou Cove, Senior Advisor and Former Trustee, Harold Grinspoon Charitable Foundation; McCrae Parker, Senior Program Manager, ZeroDivide Session Designer(s): Jeff Perlstein, Director, Strategic Engagement, ZeroDivide; Elizabeth B. Sullivan, Managing Director, Corporate, Independent and Family Philanthropy, Council on Foundations Meeting Room: Valley Room, Ballroom Level |
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| 11 a.m. - 12 p.m. | The Genius is In: Program Evaluation and Research Foundations often expect nonprofit leaders to use research to measure whether a program is having the expected outcomes. Minimally there needs to be metrics for success. What are some of the successful methods of measuring results? How should you evaluate the impact of your grantmaking? Come and ask the experts. Presenter(s): Kathleen Harris , Cochair, Bay Area Blacks in Philanthropy; Summer N. Jackson, Program Administrator, Bay Area Blacks in Philanthropy
Meeting Room: Regency Ballroom, Ballroom Level |
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| 12 p.m. - 1:30 p.m. | Savory San Jose Lunch Meeting Room: Regency Ballroom, Ballroom Level |
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| 12 p.m. - 1 p.m. | Concurrent Sessions Meet-and-Greet with Cole Wilbur, Co-Author of "Giving with Confidence: A Guide to Saavy Philanthropy" Presenter(s): Colburn S. Wilbur, Trustee and Past President, The David and Lucile Packard Foundation
Meeting Room: Regency Ballroom, Ballroom Level Meet-and-Greet with Valaida Fullwood, Author of "Giving Back" Valaida is the award-winning author of Giving Back, a 400-page hardcover book profiling of stories of philanthropy among African Americans that was developed with photographer Charles Thomas. Giving Back, her first book, was named one of the 10 Best Black Books of 2011 and received the prestigious 2012 McAdam Book Award, which recognizes “the most inspirational and useful new book for the nonprofit sector.” Presenter(s): Valaida Fullwood, Founder, New Generation of African American Philanthropists
Meeting Room: Regency Ballroom, Ballroom Level |
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| 12:10 p.m. - 12:30 p.m. | Learning Lab: Deepening the Knowledge of the Health Care Safety Net Nonprofit clinics are the front line of the so-called U.S. health care safety-net system. However, the thousands of facilities operate independently, resulting in a fragmented network—meaning it’s hardly a system at all. This session will bolster your knowledge of clinics and teach you how to help vulnerable people get care. Presenter(s): Damon Taugher, Director, Direct Relief USA Session Designer(s): Heather Bennett, Director, Foundation and Corporate Development, Direct Relief International Meeting Room: Valley Room, Ballroom Level |
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| 12:15 p.m. - 3 p.m. | Off-Site Experience: Powerful Pre-K-3 Language Development for Hispanic English Learners in a High-Needs Community Visit a public school and hear about the Sobrato Family Foundation’s decision to invest in Pre-K-3 early education for low-income English learners. Participants will visit classrooms, meet the director (a national expert in English learner education), and discuss needs, strong evaluation results and philanthropic approaches to supporting English learner education.
Boxed lunches will be provided.
Transportation will be provided by bus. Please gather on Market Street, in front of the hotel. Presenter(s): Laurie Olsen, Director, Sobrato Early Learning Language Program, The Sobrato Family Foundation; Lisa Sobrato Sonsini, Board President, The Sobrato Family Foundation Session Designer(s): Laurie Olsen, Director, Sobrato Early Learning Language Program, The Sobrato Family Foundation Meeting Room: TBD |
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| 1:30 p.m. - 1:50 p.m. | *Learning Lab: Growing Global Citizens: The Transformative Power of Travel Philanthropy How do we successfully engage the next generation to better understand and help change the world? Join us for an informal conversation with Jenny Yancey and Dan Siegel, who have designed and led philanthropic trips for teens, as well as designed tools to help parents engage their young travelers. Presenter(s): Daniel Siegel, Cofounder, Good World Advisors; Jenny Yancey, Cofounder, Good World Advisors Session Designer(s): Daniel Siegel, Cofounder, Good World Advisors; Jenny Yancey, Cofounder, Good World Advisors Meeting Room: Valley Room, Ballroom Level |
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| 1:30 p.m. - 2:30 p.m. | Simultaneous Plenary 1: Taking a Systems Approach to an Issue: Turning the Tides on Bullying Listen to the audio recording of this session. Presenter(s): Sarah Foudy, Associate Producer of "Bully" and Campaign Director, The Bully Project; Paul Henderson, Deputy Chief of Staff and Public Safety Director, Office of the Mayor, San Francisco; Jennifer Hoos Rothberg , Director, Einhorn Family Charitable Trust; Jack Weinstein, Director, San Francisco Bay Area Region, Facing History and Ourselves
Meeting Room: Imperial Ballroom, Ballroom Level |
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| 1:30 p.m. - 2:30 p.m. | Simultaneous Plenary 2: Systems Change for America’s Vulnerable Youth This session will look at the need to dramatically improve outcomes for our nation’s vulnerable young people between the ages of 16 and 24. You’ll hear from individuals involved in the Opportunity Youth movement—including foundation leaders, innovative practitioners, and a representative from the National Council of Youth Leaders—about the Opportunity Youth Incentive Fund and other initiatives taking place at the national level, and how they can translate into collective impact in local communities.
Listen to the audio recording of this session.
Access presentation materials:
Presenter(s): Anays Antongiorgi, Member, National Council of Young Leaders; Ann Higdon, President and Founder, Improved Solutions for Urban Systems ; Stephen Patrick, Executive Director, Aspen Forum for Community Solutions, The Aspen Institute; Anne Stanton, Program Director, James Irvine Foundation Session Designer(s): Stephen Patrick, Executive Director, Aspen Forum for Community Solutions, The Aspen Institute Meeting Room: Pagoda Room, Lobby Level |
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| 2 p.m. - 2:20 p.m. | *Learning Lab: Leading Delegations to the Global South: A Cross Cultural Perspective How do you conduct a site visit to the Global South? What types of waivers, delegation policies, immunizations, cultural expectations, and background information must be considered? Sample forms, policies, and handouts will be available. Presenter(s): Karen Ashmore, Executive Director, Global Education Fund Session Designer(s): Karen Ashmore, Executive Director, Global Education Fund Meeting Room: Valley Room, Ballroom Level |
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| 2:30 p.m. - 3:30 p.m. | Refreshment Break in Family Central Meeting Room: Regency Ballroom, Ballroom Level |
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| 2:30 p.m. - 2:50 p.m. | Learning Lab: Pathways to Grow Nonprofit Impact Do you want your grantmaking and your grantees to have the greatest impact possible? Join Grantmakers for Effective Organizations to explore four pathways for growing nonprofit impact and learn what new research has uncovered about the types of support making the biggest difference for grantees. Presenter(s): Meghan Duffy, Manager of Special Initiatives, Grantmakers for Effective Organizations Session Designer(s): Meghan Duffy, Manager of Special Initiatives, Grantmakers for Effective Organizations; Emily Wexler, Project Specialist for Scaling What Works, Grantmakers for Effective Organizations Meeting Room: Valley Room, Ballroom Level |
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| 3 p.m. - 4:30 p.m. | Interrupting Gun Violence – Short Screenings and Discussion The nation is grappling with yet another mass shooting, and this time the young victims have sparked a more widespread and united call for change in access to and regulation of guns in America. Nonprofit advocacy and education groups have been leading calls for sensible regulations and common sense approaches to gun safety for years. And media organizations have shined light on the scope and seriousness of the problems associated with our country’s rampant gun violence. Join us for a lively discussion about philanthropy’s role in supporting nonprofit advocacy and media organizations in their work to change the national conversation about sensible gun regulations. We’ll show clips from several foundation-funded documentary films, including “The Interrupters,” “No Tomorrow,” and “Living for 32.” Presenter(s): Mark Follman, Senior Editor, Mother Jones; Linetta J. Gilbert, Co-Leader, The Declaration Initiative; Stephen Patrick, Executive Director, Aspen Forum for Community Solutions, The Aspen Institute Moderator(s): Vincent Stehle, Executive Director, Media Impact Funders
Meeting Room: Empire Room, Ballroom Level |
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| 3 p.m. - 4 p.m. | The Genius is In: Supporting Orgs vs. Donor Advised Funds Traditionally families with significant assets have used private foundations to accomplish their charitable objectives. But now there is another option: the supporting foundation. A supporting foundation offers an exclusive philanthropic identity and benefits without the burden of administrative responsibilities. This seasoned professional will explain the pros and cons and suggest the correct alternative for you. Presenter(s): Mari Ellen Reynolds Loijens, Chief Business Development and Brand Officer, Silicon Valley Community Foundation
Meeting Room: TBD |
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| 3 p.m. - 5 p.m. | The Graphic Recorders Are In Presenter(s): Kayla Kirsch, President, LEAPFROG CONSULTING; Karen Perkins, LEAPFROG CONSULTING
Meeting Room: TBD |
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| 3:30 p.m. - 5:30 p.m. | Bringing Impact Investing Into Your Foundation An interactive discussion with young trustees and staff involved in leading the push towards mission related investing in their family foundations. Learn about the inherent challenges and opportunities that exist in shifting a foundation's investment dollars from the perspectives of this multi-generational, multi-role panel.
Listen to the audio recording of this session.
Presenter(s): Meredith Benton, Client Portfolio Manager, Boston Common Asset Management; Isaac Bloch, President, Philip and Muriel Berman Foundation; Richard Graves, Vice President, Business Development, Ethical Electric; Lisa Monzón, Program Officer and Manager, The David and Lucile Packard Foundation Moderator(s): Dana Lanza , CEO, Confluence Philanthropy Session Designer(s): Michael Gast, Family Philanthropy Coordinator, Resource Generation; Dana Lanza , CEO, Confluence Philanthropy; Carol Malnick, Associate Director, Boston Common/Friedman Family Foundation Meeting Room: Gold Room, Ballroom Level |
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| 3:30 p.m. - 5:30 p.m. | Edible Education: An Essential Curriculum Edible Education sits at the intersection of our nation’s education, food, and public health systems. Join chef teachers from the Edible Schoolyard in Berkeley, Calif., and discover how Edible Education nourishes and sustains the health of our children, communities, and environment.
Moderator(s): Pam Scott, Founder, The Curious Company
Presenter(s): Esther Cook , Head Chef Teacher, Edible Schoolyard; Katrina Heron, Director, Edible Schoolyard Project ; Nicholas Lee , Kitchen AmeriCorps Member, Edible Schoolyard Berkeley; Monica Linzner, Chef Teacher, Edible Schoolyard; Pam Scott, Founder, The Curious Company Session Designer(s): Liza Siegler, Director of Partnerships and Engagement, The Edible Schoolyard Project; Marie Young, Director, Donor Engagement, Silicon Valley Community Foundation Meeting Room: Regency Ballroom Foyer, Ballroom Level |
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| 3:30 p.m. - 5 p.m. | Concurrent Sessions *Engaging the Young in Family Philanthropy- A Case Study The earlier the joy of giving is instilled, the more likely we are to create life-long philanthropists. A family with three generations involved in charitable giving will share the hands-on tools and techniques that keep everyone—ages 6 to 76—engaged in and enthusiastic about the foundation’s work. Presenter(s): Clay Adams, Student, Meyerholz Elementary School; Marilee Adams, President, Edward and May Yee Chan Memorial Foundation; Edward Chan, Board Member, Edward and May Yee Chan Foundation Moderator(s): Janet Y. Spears, Chief Operating Officer, East Bay Community Foundation Session Designer(s): Carolyn Doelling, Director of Philanthropic Services, East Bay Community Foundation Meeting Room: California Room, Ballroom Level *Going Global: What Every family Philanthropy Needs to Know Global grantmaking is one of the most satisfying aspects of a family foundation’s work, but it can also be one of the most challenging. This session will cover the essentials of global grantmaking, explore the many points of entry—including funding through intermediaries and cross-border grantmaking—and look at how a family foundation can translate its passions and expertise into a global program strategy.
Listen to the audio recording of this session.
Presenter(s): John Harvey, Managing Director, Global Philanthropy, Council on Foundations; Heather Lord , Trustee, RNR Charitable Foundation Session Designer(s): John Harvey, Managing Director, Global Philanthropy, Council on Foundations; Heather Lord , Trustee, RNR Charitable Foundation Meeting Room: Sacramento, Tower Meeting Room Be the Change New personal and relational practices are transforming the way we think about social change, grantmaking, and even family. Join family foundation and nonprofit leaders to hear more about this cutting-edge framework.
Listen to the audio recording of this session.
Presenter(s): Tara Brown, Director, Hidden Leaf Foundation; Ellen Friedman , Executive Director, Compton Foundation; Sarita Gupta, Executive Director, Jobs With Justice ; Arif Mamdani, Executive Director, Seasons Fund for Social Transformation; Akaya Windwood, President, Rockwood Leadership Institute Moderator(s): Jocelyn V. Sargent, Program Officer, W.K. Kellogg Foundation Session Designer(s): Jocelyn V. Sargent, Program Officer, W.K. Kellogg Foundation Meeting Room: Pagoda Room, Lobby Level Big Data for Social Good Here’s an interesting fact: We now create all pre-2003 data every two days. Join us for a lively discussion about how to identify data-savvy organizations that will maximize the value of their funding (data = impact), and how to help stragglers join the big data revolution.
Listen to the audio recording of this session.
Presenter(s): Bob Filbin, Data Analyst, Manager, DoSomething.org; Nancy Lublin, CEO and Chief Old Person, Do Something, Inc. Session Designer(s): Nancy Lublin, CEO and Chief Old Person, Do Something, Inc. Meeting Room: Atherton, Tower Meeting Room How Policy Affects Systems Presenter(s): Kimberly Ascoli Almeida, Program Manager, Americas , Levi Strauss Foundation ; Shelton R. Roulhac, Senior Policy Analyst, Council on Foundations; June Wilson, Co-Executive Director, Quixote Foundation, Inc. Moderator(s): Pronita Gupta, Director of Programs, Women Donors Network Session Designer(s): Shelton R. Roulhac, Senior Policy Analyst, Council on Foundations Meeting Room: Hillsborough, Tower Meeting Room Salon: Practices of Systems Change You know you want to fund real systems change, you have even done the analysis to figure out where there is leverage and how you want to change the rules of the game. Now what? Join a discussion on how to implement a systems change strategy. What are the practices that work? What kinds of organizations or leaders make good partners? What are the risks? What are the opportunities for family foundations to play exceptional roles. Presenter(s): Joy Anderson, President and Founder, Criterion Ventures
Meeting Room: Piedmont, Tower Meeting Rooms Top 10 Ways Family Foundations Get Into Trouble Whether you are new to the field or a seasoned expert, this session touches on some key legal questions that arise in the day-to-day business of running a family foundation. Learn how to avoid common legal pitfalls in areas such as self-dealing, compensation, conflicts of interest, grants to noncharities, and use of fiscal agents and tickets to fundraisers.
Listen to the audio recording of this session.
Download the presentation slides. Presenter(s): Kelly Shipp Simone, Vice President Legal Affairs, Council on Foundations Session Designer(s): Kelly Shipp Simone, Vice President Legal Affairs, Council on Foundations Meeting Room: Crystal Room, Ballroom Level |
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| 4:45 p.m. - 6:10 p.m. | Film + Video Festival: Where Soldiers Come From a film by Heather Courtney From a snowy, small town in Northern Michigan to the mountains of Afghanistan, this film follows the four-year journey of childhood friends who join the National Guard after graduating from high school. It offers an intimate look at the young Americans who fight our wars, the families and towns they come from—and the way one faraway conflict changes everything.
Watch the trailer.
Meeting Room: Empire Room, Ballroom Level |
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| 5 p.m. - 6 p.m. | Refreshment Break in Family Central Meeting Room: Regency Ballroom, Ballroom Level |
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| 6 p.m. - 9 p.m. | Monday Night at the Movies: The Power of Two Registration is required for this event. Tickets are $60.
Co-Sponsored by Media Impact Funders
Join us for dinner and a screening of “The Power of Two” with the film’s director, Academy Award nominee Marc Smolowitz, and heroines Anabel Stenzel and Isabel Stenzel Byrnes. The film offers an intimate portrayal of the bond between Japanese-American twin sisters Anabel and Isabel, including their battle with the fatal genetic disease cystic fibrosis (CF) and miraculous survival through double lung transplants. Their opportunity to live healthy lives—thanks to the gift of organ donation—compelled them to become advocates for better access to health care, treatment, and transplantation worldwide. You’ll also hear how “The Power of Two” multimedia project has inspired and motivated action around organ donation and transplantation, and raised awareness of CF and other chronic illnesses.
Watch the trailer. Presenter(s): Andrew Byrnes, Producer, "The Power of Two"; Marc Smolowitz, Director/Producer, "The Power of Two"; Isabel Stenzel Byrnes, Author, Patient Advocate, and Social Worker, "The Power Of Two"; Anabel Stenzel, Author, Patient Advocate, and Genetic Counselor, "The Power Of Two" Session Designer(s): Vincent Stehle, Executive Director, Media Impact Funders Meeting Room: Empire Room, Ballroom Level |
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| 6 p.m. - 9 p.m. | |
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